Many stakeholders are implementing patient-related initiatives – including engagement and involvement – in drug development, research, and delivery of healthcare. Quantifying and measuring the impact of initiatives related to “patient engagement” or “patient centeredness” has been difficult, as these terms are often used interchangeably and are often not defined. This can lead to a misunderstanding of concepts and expectations. This lack of a consistent, clear, definition for research has been highlighted in outcomes research, pharmacoepidemiology and related fields, as a barrier to implementing and measuring patient engagement in the field.
The purpose of this webinar is to present the ISPOR definition of “patient engagement in research.” The definition was derived from a multi-step process, including a systematic review and qualitative analysis of existing definitions, and a multi-stakeholder review. The implications of the published definition will be shared from key stakeholder perspectives including patients, researchers, and industry.