Many stakeholders are implementing patient-related initiatives – including engagement and involvement – in drug development, research, and delivery of healthcare. Quantifying and measuring the impact of initiatives related to “patient engagement” or “patient centeredness” has been difficult, as these terms are often used interchangeably and are often not defined. This can lead to a misunderstanding of concepts and expectations. This lack of a consistent, clear, definition for research has been highlighted in outcomes research, pharmacoepidemiology and related fields, as a barrier to implementing and measuring patient engagement in the field. The purpose of this webinar is to present the ISPOR definition of “patient engagement in research.” The definition was derived from a multi-step process, including a systematic review and qualitative analysis of existing definitions, and a multi-stakeholder review. The implications of the published definition will be shared from key stakeholder perspectives including patients, researchers, and industry.
Learning Objectives:
After attending this webinar, participants will be able to understand:
- Define “patient engagement in research”
- Describe the relevance and impact of adopting a standard definition of ‘patient’ engagement in research,’ as well as organizational and research implications
- Provide initial reaction to and impressions of the definition, as well as implications for its adoption in their area, such as metrics for measuring engagement activities, and shared engagement principles for patient-industry/research collaborations.
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