First published in 2007 as a reference handbook with practical information on the design, operation, and analysis of patient registries, the U.S. Agency for Healthcare Research and Quality’s (AHRQ) “Registries for Evaluating Patient Outcomes: A User’s Guide” is among the most cited texts on the subject of patient registries.
In September, the 4th edition of the handbook* will be released. Join AHRQ and Senior Editors of the User’s Guide for a webinar exploring what to expect and what’s new, including:
- Using existing data sources and registries as sources for real-world data and real-world evidence for informed decision making
- Using common data elements and standardized outcome measures
- Effectively engaging different stakeholders, including patient representatives
- Understanding evolving ethics, privacy, and informed consent requirements