An overwhelming majority of people with chronic and rare diseases (83%) and family caregivers (81%) who took part in a national survey agree that engaging patients in research can improve the value of health research. Understandably, the survey participants also value research that measures things that patients care about, such as daily functioning (87% of patients and 89% of family caregivers). Read more survey findings here. (Source: The Sacramento Bee, 7/11/13)
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