The ISPOR Taxonomy of Patient Registries: Classification, Characteristics and Terms demystifies the world of patient registries by providing a working definition and describing distinguishing characteristics of a patient registry. It also defines terms used in the design, development, and implementation of registries and the terms used in the analysis, reporting and publishing of registry data. Each term includes a brief definition, a broader explanation, the associated values & uses, and concludes with a discussion of issues or conflicts related to the term. Available for purchase here. (Source: ISPOR)
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