As Parkinson’s patient and activist, Jon Stamford, said, “It seems to me, that ‘quality of life’ is when YOU tell ME what’s missing in my life.” When measuring quality of life, how do developers know whether their developments actually matter to patients and caregivers living with their disease? And how do we get to the place where quality of life is when I tell YOU what’s missing in MY life, and we develop better interventions to improve outcomes? Read more here. (Source: BMJ, 11/7/14).
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