PatientsLikeMe has built its entire data scheme using patient-supplied symptoms, what they call the Patient Voice. This has helped tremendously to connect patients with one another, however it has proven to be quite a challenge when PatientsLikeMe, tried to use its data base to connect to the clinical perspective when working with the pharmaceutical industry. What have they learned from listening to patients describe their symptoms in their own words? How is it different that having them check out a list of clinical symptoms provided to them? How are an HEOR researchers use this information while developing PRO instruments and in RWE data collection? Learn more here. (Source: Aaron Krol, Clinical Informatics News, 5/29/15)
