Transparency, Oversight, and Opt-in Consent Makes Patients More Open to Sharing Data

A newly published paper in JAMA Network Open found that patients are more likely to participate in patient data sharing programs if certain conditions are met. Survey data from 3,500 hundred patients showed that patients valued transparency, opt-in informed consent, oversight mechanisms, and privacy.

According to Sara Heath, “These findings are important as more medical research hinges on patient opt-in for health data sharing. The bevy of data patients generate simply by interacting with their own health and well-being—clinical data, wearable data, information from social media, and data gleaned from mobile apps—can all be valuable to improving patient and population health, the researchers said.”

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(Source: Patient Engagement HIT, March 3^rd, 2023)