RWD Advances Rare Disease R&D, Brings Hope to Patients

Patient registries are fast becoming a critical source of real world data (RWD), especially in rare disease research and development (R&D). A recent article discusses the acceleration in orphan drug approvals and the benefits of the STATinMED RWD Insights tool.

“Rare diseases are not so rare in RWD…Accounting for variability in access to care based on payer and healthcare infrastructure, our claims data population in STATinMED RWD Insights can help to monitor the outcomes and identify gaps in available therapeutics and healthcare resources for those with rare diseases.” Read more here.

(Source: Nora Janjan, STATinMED, 11/2021)