New research conducted by the National Pharmaceutical Council (NPC) and National Health Council (NHC) found that the patient community has an optimistic view of real-world evidence, but noted some key concerns that researchers say need to be addressed.
The researchers say patient groups will be vital in helping patients better understand RWE.
“Patients groups will play a critical role in helping to educate constituents on understanding, contributing to, and using RWE,” researchers say. “To maximize patient uptake and the co-development and application of RWE, patient groups require education and tools.”
How the data is gathered and used, however, is a main concern among patients, the NPC states in a press release.
“Patients also want clarity around privacy and ownership of data from patient encounters with the health system and agreed that patient-generated data should be included in the development of RWE,” NPC says.
To read the study, click here.