Personalized Medicine Coalition Takes Aim at Setting Patient-centered Research Agenda

October 7, 2020

The Personalized Medicine Coalition (PMC) released a new patient-centered research agenda for personalized medicine defining 45 research questions across nine patient-identified areas of special concern. The research questions specifically address concerns related to:

Patient-provider communication;
Patient education;
Caregiver, pediatric and family considerations;
Provider education, resources and collaboration;
Access, affordability and utilization;
Coverage and reimbursement;
Clinical trials;
New technologies and data management; and
Outcomes research.

The report is the result of two years of discussions with over 120 health care stakeholders including patients, caregivers and patient advocacy organizations. With this new research agenda, PMC aims to shift the current healthcare paradigm towards one that is more patient-centered.

PMC President Dr. Edward Abrahams said, “Studying the 45 research questions contained in the report will bring us one step closer to an era of personalized medicine by revealing how health care decision-makers can work even more closely with patients to develop prevention and treatment strategies that are tailored to patients’ biological characteristics, preferences, values, and circumstances.” Download the full report here.