The Personalized Medicine Coalition (PMC) released a new patient-centered research agenda for personalized medicine defining 45 research questions across nine patient-identified areas of special concern. The research questions specifically address concerns related to:
- Patient-provider communication;
- Patient education;
- Caregiver, pediatric and family considerations;
- Provider education, resources and collaboration;
- Access, affordability and utilization;
- Coverage and reimbursement;
- Clinical trials;
- New technologies and data management; and
- Outcomes research.
The report is the result of two years of discussions with over 120 health care stakeholders including patients, caregivers and patient advocacy organizations. With this new research agenda, PMC aims to shift the current healthcare paradigm towards one that is more patient-centered.
“The research agenda will play an important role in advancing an era of patient-centered health care by aligning future research in personalized medicine with the perspectives of the patients who will be most affected by new developments in this rapidly evolving field,” says Lori Frank, Ph.D., Memory Screening Advisory Board Member, Alzheimer’s Foundation of America; Senior Behavioral Scientist, RAND Corporation; Board Member, Personalized Medicine Coalition. Download the full report here.
(Source: Personalized Medicine Coalition, August 21, 2020)