In an interview with the American Journal of Managed Care (AJMC), Institute for Clinical and Economic Review (ICER) President Dr. Steve Pearson said patient perspectives are vital to its review process.
Pearson said from “the very beginning” of the review process, ICER makes contact with patient groups in an effort to fully understand from their perspective what living with a particular condition is like.
“We know that they have heard policy makers sometimes, if it’s an organized patient group, they’ve heard policy makers, they’ve heard clinicians sometimes get it wrong, where they don’t understand the full spectrum,” Pearson said. “They don’t understand what really matters to most patients.
“We establish those relationships, we try to make sure we get a diverse set of patients and patient groups by reaching out to as many as we can find, and then again at that scoping phase, it’s critical,” Pearson said. “We also feed back to them our early results and make sure that they get a chance to have input. We often have, in a sense, a patient expert be one of the official reviewers of our draft report before it goes out for more full public comment.”
Click here to watch the interview with Pearson on AJMC’s website. (A transcript is also available to read)