Alport Syndrome Foundation Joins Pulse Infoframe’s healthie™ Kidney Disease Patient Registry

Breaking Down Silos to Accelerate Research for Rare Kidney Disease
(PRUnderground) September 14th, 2021
Alport Syndrome Foundation and Pulse Infoframe are pleased to announce that the advocacy group for Alport syndrome, a rare kidney disease, will be joining the National Kidney Foundation (NKF) Patient Network. Powered by Pulse Infoframe’s healthie™ platform, the NKF Patient Network fosters data collaboration among patient advocacy groups with kidney disease.

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2021-09-14 19:01:00