Questionaires / Assessments
PPT Presentation by Gemmen et al reporting on the Patient Registry SIG from ISPOR.
Almac, a CRO, partners with with FACIT.org for electronic distribution of the FACITs Patient-Reported-Outcomes(PRO) and Quality of Life (QOL) assessments.
Brief patient-completed questionnaire that evaluates patients' experiences with a specific named physician and that physician's practice.
The Academy of Managed Care Pharmacy's (AMCP's) Quality Task Force has developed a guide for managed care organizations to use when implementing quality measures. (Source: urac-amcp.org, Winter 2011)
In the Age of Metrics, vocation after vocation is discovering numbers. Doctors are going quant with evidence-based medicine, which promises to improve care by quantifying different treatments’ probabilities of success. (NYT, Nov. 21. 2009)
Assessment of Quality of Life (AQoL) utility instruments and their scoring algorithms are now available free of charge. The website also provides a user guide, answers to common questions, links to research papers and other websites and discussion of validation and other issues related to economic evaluation.
The National Quality Forum recently endorsed the proportion of days covered (PDC)—a measure of medication adherence—as an indicator of quality in drug therapy management. (Source: J Manag Care Pharm. 2009;15(9):728-40 Copyright © 2009, Academy of Managed Care Pharmacy.)
Patients can expect significant savings and better outcomes from their prescription medications when health care professionals use comparative effectiveness research, according to researchers at the University of Illinois at Chicago.
The Consumer Expenditure Survey (CE) program consists of two surveys, the Quarterly Interview Survey and the Diary Survey, that provide information on the buying habits of American consumers, including data on their expenditures, income, and consumer unit (families and single consumers) characteristics. The survey data are collected for the Bureau of Labor Statistics by the U.S. Census Bureau.
Used to assess the level of patient’s satisfaction or dissatisfaction with the "Convenience" of medication patients are taking.
Information on the threshold values used in CHOICE analyses for the relative CE of an intervention in current international dollars of 2000 for 14 countries. Following the recommendations of the Commission on Macroeconomics and Health, CHOICE uses gross domestic product (GDP) as a readily available indicator to derive the following three categories of cost-effectiveness: Highly cost-effective (less than GDP per capita); Cost-effective (between one and three times GDP per capita); and Not cost-effective (more than three times GDP per capita)
Kent Bottles discusses David Eddy's history and recent speech in this posting. (Source: ICSI Health Care Blog, Nov. 30, 2009)
"The proposal to include $1.1 billion for comparative-effectiveness research (CER) in the federal stimulus package encountered a vigorous and well-coordinated backlash. The campaign to gut this funding ultimately failed, but the debate it engendered and the resonance of the opposition's arguments in both lay and policy circles reveal much about the issues that will surround such research and its application in the coming years."
DIRUM is a practical, open-access database of resource-use questionnaires for use by trial health economists.
"The American Reinvestment and Recovery Act gives comparative-effectiveness research (CER) a large boost in funding over the next 2 years. Despite a consensus that better information about the relative effectiveness of different medical interventions is needed to improve the quality and value of care, some view CER with skepticism."
The "Effectiveness" scale on the Treatment Satisfaction Questionnaire for Medication (TSQM) is used to assess the level of satisfaction or dissatisfaction with the (perceived) "Effectiveness" of medication.
EQ-5D is a standardized instrument for use as a measure of health outcome. Applicable to a wide range of health conditions and treatments, it provides a simple descriptive profile and a single index value for health status that can be used in the clinical and economic evaluation of health care as well as population health surveys. EQ-5D has been specially designed to complement other quality of life measures such as the SF-36, NHP, SIP or disease-specific measures.
AHRQ Project designed to strengthen the science base of quality measurement while expanding the scope and availability of validated, ready-to-use measures. Q-SPAN builds on past work in quality measurement by public and private organizations through eight cooperative agreements to develop and test additional clinical performance measures for specific conditions, patient populations, and health care settings.
These instruments provide vital measures of the effectiveness of treatment as well as the general well-being and physical and psychological state of the patient.
(Source: Outsourcing Pharma.com)
Blog posting about November 2010 lecture questioning the value of EBM, by one of the formidable experts in the field. (Source: ICSI Health Care Blog)
AHRQ/QSPAN assessing the quality of care delivered in managed health care plans, this project will examine care delivered to men ages 18-50 and women age 50 and over. Conditions considered: Twenty-seven conditions for new indicator development (e.g., anxiety, colorectal cancer, prostate cancer, menopause); 12 to be adapted from the HCFA study (e.g., alcoholism, breast mass, diabetes, low back pain).
The "Global Satisfaction" scale of the Treatment Satisfaction Questionnaire for Medication (TSQM) is used to assess the overall level of satisfaction or dissatisfaction with medication patients are taking.
Health information service business; has database with Payroll Data; Attendance, Absence and Disability Data; Workers Compensation Data; Health Plan Data, including Drug Safety Data, when available Individual Health & Productivity Data. Also provides consulting services to employers not large enough for database services, and includes technical assistance in health benefits design and implementation, and human capital risk management training.
The AHRQ QIs are measures of quality associated with processes of care that
occurred in an outpatient or an inpatient setting.
Download version
Source for questionnaires
Health Utilities Inc (HUInc) specializes in preference-based (utility) measures of health-related quality of life for use in describing treatment processes and outcomes in clinical studies; economic evaluations of health care programs; the measurement and monitoring of population health.
HealthActCHQ gives voice to patients' and families' perspectives through our industry-leading outcomes surveys to assess health-related quality of life and its impact on everyday functioning and well-being.
The Care Guidelines promote quality care by providing healthcare professionals with access to best practice based on annually updated evidence. The Care Guidelines also display Quality Measures used by CMS, and each inpatient topic includes care planning information -- highlighting interventions that help lead to improved outcomes. (Source: Milliman CareGuidlines, 2010)
Overview, access to instruments, etc. from CDC
HEDIS® is the gold standard in health care performance measurement, used by more than 90 percent of the nation's health plans and many leading employers and regulators. HEDIS is a set of standardized measures that specifies how organizations collect, audit and report performance information across the most pressing clinical areas, as well as important dimensions of customer satisfaction and patient experience.
NCQA licenses organizations and certifies selected employees or contractees of licensed organizations to conduct audits using NCQA's standardized audit methodology. Auditors use the first half of the audit, the overall IS review, to identify data areas to focus on during the second half of the review (HEDIS Compliance Standards). This allows for customization of each audit depending on the individual health plan's strengths and weaknesses. The audit adds a higher degree of integrity to HEDIS data, and enables MCOs to provide consumers and purchasers with consistent and comparable HEDIS reports.
HHS Measure Inventory is an inventory of the measures that are currently being used by the Divisions in HHS for quality measurement, improvement, and reporting. The Department's goal is to further advance collaboration among members of the quality community and to advance the effective use and harmonization of quality of care measures. This is the first time a comprehensive list of quality measures used by the Department has been posted in a single location.
The increasing importance of patient experience and the sustained interest in comparing people's satisfaction with the health system across different countries and time periods sug- gests the need to characterize the relationship between them.(Source: Sara N Bleich,a Emre O¨zaltinb & Christopher JL Murray)
By the American College of Occupational and Environmental Medicine (ACOEM). The concept of Health and Productivity Management stresses the health enhancement of workers as an essential element in workplace productivity. This toolkit, which can be utilized for up to 10 AMA PRA Category 1 Credit(s)™, provides a comprehensive collection of educational materials on HPM, including audio, video and text.
The “HPQ-Select” is an employee self-reporting tool that captures employee-reported data on health conditions, absence, presenteeism and health-related lost productivity. The tool simplifies the Health and Work Performance Questionnaire (HPQ) that was developed by Dr. Ronald Kessler of Harvard Medical School and the World Health Organization, and provides a more employer-focused outcome report. IBI developed the HPQ-Select in partnership with Dr. Kessler and the Midwest Business Group on Health.
This is a paper in progress that blends health related quality of life with health economic theory. Very intriguing.
This Webcast offered an inside look at the efforts of two medical practices—one primary care and one specialty—to improve their performance in the areas of quality measured by the CAHPS Clinician & Group Survey. (Source: Dr. Finn & Martinez, UCLA Dept of Medicine, AHRQ, September 2009)
As use and understanding of health-related quality of life (HRQoL) and other patient-reported outcomes (PROs) have increased, researchers, clinicians and policy-makers have begun exploring different applications for these patient-centered outcome measures.
Short and long form Qx developed by the Kidney Disease Quality of Life Working Group with support from Amgen.
The article describes a study where a health status questionnaire was conducted, its interpretation and use. (Source: Medical New Today, Dec. 2, 2009)
The article describes a study where a health status questionnaire was conducted, its interpretation and use. (Source: Medical New Today, Dec. 2, 2009)
The Medical Expenditure Panel Survey is a set of large-scale surveys of families and individuals, their medical providers, and employers across the United States.
Provides a full list of instruments that have been approved by the Scientific Advisory Committee of the Medical Outcomes Trust. Click on the title of each instrument for a description and information about obtaining it.
Home of HEDIS, The Healthcare Effectiveness Data and Information Set (HEDIS), which is a tool used by more than 90 percent of America's health plans to measure performance on important dimensions of care and service.
The NHWS database provides broad coverage of healthcare, with results that are generalizable to the population to deliver prevalence information in over 150 therapeutic conditions. NHWS includes information for patients who are diagnosed, undiagnosed yet symptomatic, untreated and for patients treated with a prescription or over-the-counter medication.
Nationally representative sample survey of U.S. home health and hospice agencies. It is designed to provide descriptive information on home health and hospice agencies, their staffs, their services, and their patients.
Conducted annually since 1965, and is a national probability survey designed to meet the need for information on characteristics of inpatients discharged from non-Federal short-stay hospitals in the United States.
Continuing series of national sample surveys of nursing homes, their residents, and their staff. Although each of these surveys emphasized different topics, they all provided some common basic information about nursing homes, their residents, and their staff.
One in a family of databases and software tools developed as part of the Healthcare Cost and Utilization Project (HCUP), a Federal-State-Industry partnership sponsored by the Agency for Healthcare Research and Quality. HCUP data inform decision-making at the national, State, and community levels. The Nationwide Emergency Department Sample (NEDS) is a unique and powerful database that yields national estimates of emergency department (ED) visits.
Invites the public to help craft the next generation of health care quality measures by participating in a public comment period about proposed changes to the next edition of NCQA's Healthcare Effectiveness Data and Information Set (HEDIS).”
Suggest evidence-based quality measures and measure sets for possible inclusion in the National Quality Measures Clearinghouse™ (NQMC)
Link to the ISPOR Working Group. Goal is to increase the appropriate use of methods for measurement of patient preferences and values in outcomes research and the use of this information in health care technology assessment.
Paediatric Economic Database Evaluation (PEDE) Project was conceived as part of a research program in paediatric health economic methods. In Phase 1, a comprehensive database of over 750 paediatric economic evaluations published over a 20-year period was created. Phase 2 examined key trends in publication.
MedicalTranslation blog post on PRO and FDA
Patient Reported Outcomes Measurement Information System (PROMIS),
funded by the National Institutes of Health (NIH), is a system of highly
reliable, valid, flexible, precise, and responsive assessment tools
that measure patient–reported health status.
From University of Toronto
Quality Health runs major national programmes on behalf of the NHS. We run the National Cancer Patient Experience Survey Programme for the Department of Health, with the results from the 2010 survey being published in December 2010 and January 2011. This survey programme covers cancer services in acute hospitals and examines the results by tumour group based on ICD10 codes
Mission is to develop health care provider performance indicators, to determine the validity of the indicators in the field, and to educate participants as to the applications of the indicators in identifying potential opportunities for improvement.
Responsiveness was included as an intrinsic goal in the health systems performance framework because the way people are treated when they come into contact with the system can improve or reduce their well-being independently of health outcomes.
Details on the SF-36, the"short-form" health status questionnaire developed for the Medical Outcomes Study including licensing requirements and contact personnel.
This "Side Effects" scale* on the Treatment Satisfaction Questionnaire for Medication (TSQM) is used to assess the level of dissatisfaction with the "Side Effects" of medication patients are taking.
Pay for view article by Sculpher in PharmacoEconomics.(Source: PharmacoEconomics, 2010, vol. 28, issue 5, pages 347-349)
Pay for view article by Sculpher in PharmacoEconomics.(Source: PharmacoEconomics, 2010, vol. 28, issue 5, pages 347-349)
Pay for view article by Sculpher in PharmacoEconomics.(Source: PharmacoEconomics, 2010, vol. 28, issue 5, pages 347-349)
Report from Roundtable of managed care experts and pharmacoeconomists on "Overcoming Barriers to Incorporating Real-World Data into Healthcare Decision-making" is summarized in recent article by Brixner et al. in Journal of Managed Care Pharmacy. Includes key recommendations. Fairman and Curtis follow with an editorial on challenges of editing these types of studies for JMCP. If you do research with these type of data, this is a must-read.
Report from Roundtable of managed care experts and pharmacoeconomists on "Overcoming Barriers to Incorporating Real-World Data into Healthcare Decision-making" is summarized in recent article by Brixner et al. in Journal of Managed Care Pharmacy. Includes key recommendations. Fairman and Curtis follow with an editorial on challenges of editing these types of studies for JMCP. If you do research with these type of data, this is a must-read.
Access questionnaires to use, scoring demonstrations, etc.
he editors of this journal are pleased to offer electronic publication of accepted papers prior to print publication. These papers can be cited using the date of access and the unique DOI number. Any final changes in manuscripts will be made at the time of print publication and will be reflected in the final electronic version of the issue.
A for fee audio conference describing best practices for Translation and Linquistic Validation of PRO measures.
