Databases

Agency for Toxic Substances Disease Registry (ATSDR)

Part of the US Dept of HHS that conducts public health assessments, health studies, and health surveillance for those exposed to hazardous materials, and maintains exposure and disease registries for long- term follow-up or specific scientific studies. ATSDR analyzes the statistical significance of human disease, biomarkers, and other health outcomes in the presence of environmental contamination to establish possible relationships between exposure and health.

Ambulatory Care Experiences Survey

Brief patient-completed questionnaire that evaluates patients' experiences with a specific named physician and that physician's practice.

Ambulatory Care, Hospitalization, and Mortality Data

Links to HCUPS, MEPS, NHDS, mortality data, CDC Wonder, etc.

American Hospital Directory

O-line data for over 6,000 hospitals, derived from MedPAR and OPPS (Medicare claims data), hospital cost reports, and other files from Centers for Medicare and Medicaid Services.

Availability of data to conduct relative effectiveness assessments

The document provides a survey of the current processes on data availability during relative effectiveness assessments at national level. It highlights a number of key findings and best practices. Lastly the document contains some possible recommendations for the future.

Blue Cross Plans Join In Initiative to Increase Transparency

Blueprint for a Distributed Research Network To Conduct Population Studies and Safety Surveillance

Report from the Developing Evidence to Inform Decisions about Effectiveness (DEcIDE) Research Network.

CAHPS Benchmarking Database: Comparative Data

The CAHPS Database is the national repository for data from selected CAHPS surveys. The online reporting system contains comparative data for the CAHPS Health Plan (HP) Survey and the CAHPS Clinician & Group (CG) Survey.

CAHPS Database Online

National repository for data from the CAHPS (Consumer Assessment of Healthcare Providers and Systems) family of surveys.

CancerMPact

CancerMPact® is an invaluable oncology decision support tool for market analysis, strategic planning, and identification of commercial opportunities in the U.S., Western Europe, Japan, and China. This tool is composed of web-based integrated modules: Treatment Practices and Evolution (Treatment Architecture, Treatment Evolution, and Emerging Technologies), Patient Metrics, and Monthly Drugs and Regimens. From Kantar Health.

CancerNFluence

CancerNFluence® profiles physicians in the U.S. and Western Europe who influence treatment decisions within and across high-profile cancers affecting large populations. CancerNFluence® utility extends beyond sales force targeting. Oncologists tell you whom they trust, potentially improving the impact of speaker programs/Ad Board recruitment; medical science liaison group alignment; clinical investigator recruitment; new product planning; and marketing research recruitment. From Kantar Health.

CaPSURE Database

CaPSURE (Cancer of the Prostate Strategic Urologic Research Endeavor)is a longitudinal observational study of prostate cancer patients nationwide.

Case Management Resource Guide

Online directory of Dorland Healthcare Information.

CDC Morbidity and Mortality Weekly

CDC WONDER

WONDER provides a single point of access to a wide variety of reports and numeric public health data. Wide-ranging OnLine Data for Epidemiologic Research -- an easy-to-use, menu-driven system.

CEA Data Sources

Cost of medical goods and services. Ambulatory care, hospitalization, and mortality rates. Incidence and prevalence of diseases. Health-Related Quality of Life (HRQL); Sites that provide access to multiple datasets. Population Data (US Bureau of the Census)

CEA Registry from Tufts Medical Center

By browsing our interactive website, you can learn about the latest published cost-effectiveness analyses. The CEA Registry offers detailed information on more than 2500 cost-effectiveness analyses covering a wide array of diseases and intervention types.

Center for Disease Control

Provides data on morbidity, epidemiological surveillance of infectious diseases, chronic diseases, occupational diseases and injuries, vaccine efficacy, and safety.

Center for Health Value Innovation Unveils New Tool to Help Employers Reduce Health Care Costs and Realize Healthier, Engaged Employees

Center for Medicare and Medicaid Services Data Compendium

The CMS Data Compendium contains historic, current, and projected data on Medicare enrollment and Medicaid recipients, expenditures, and utilization. Data pertaining to budget, administrative and operating costs, individual income, financing, and health care providers and suppliers are also included. National health expenditure data not specific to the Medicare or Medicaid programs is also included making the CMS Data Compendium one of the most comprehensive sources of information available on U.S. health care finance. This CMS report is published annually in electronic form and is available for each year from 2002 through present.

Centre for Reviews and Dissemination Databases, University of York

The CRD databases are updated daily and provide decision-makers with access to 9000 quality assessed systematic reviews, 11000 economic evaluations, 10,000 summaries of HTA, Cochrane reviews/protocols, and summaries of Campbell reviews. Contains access to DARE (Database of Abstracts of Reviews of Effects), NHS EED (NHS Economic Evaluation Database), and HTA (Health Technology Assessment) databases.

Challenges and Recommendations Related to Assuring Quality Outcomes Data Collected via Electronic Platforms

Linda S Deal, MS, Head, Health Outcomes, eResearch Technology Inc, Philadelphia, PA, USA; Paul O'Donohoe, BSc, Manager of Health Outcomes, CRF Health, London, UK; Jean Paty, PhD, Chief Scientist and Regulatory Officer, PRO Consulting, Invivodata Ltd., Pittsburgh, PA, USA; Diane Wild, MSc, Vice President, ePRO and Translations, Oxford Outcomes Ltd., an ICON PLC Company, Oxford, Oxon, UK, ISPOR Washington DC, 2012.

Cochrane Collaboration

International network of more than 28,000 dedicated people from over 100 countries. We work together to help health care providers, policy-makers, patients, their advocates and carers, make well-informed decisions about health care, based on the best available research evidence, by preparing, updating and promoting the accessibility of Cochrane Reviews

Cochrane Database of Systematic Reviews (COCH)

The Cochrane Database of Systematic Reviews (COCH) is part of Ovid's Evidence Based Medicine Reviews collection, and includes the full text of the regularly updated systematic reviews of the effects of healthcare prepared by The Cochrane Collaboration. All twelve Cochrane reviews and ten protocols that make up the Cochrane Database of Methodology Reviews will be transferred to the Cochrane Database of Systematic Reviews.

Cochrane Library

Contains high-quality, independent evidence to inform healthcare decision-making. It includes reliable evidence from Cochrane and other systematic reviews, clinical trials, and more. Cochrane reviews bring you the combined results of the world’s best medical research studies, and are recognised as the gold standard in evidence-based health care.

Community Reports – Center for Studying Health System Change

Community Reports provide information and insights about developments in the 12 communities that HSC is studying intensively over time to better understand the changing health system and variations across markets. The reports describe what has changed every two or three years in these communities, including how care is organized and delivered; the strategies of local employers and public purchasers; and how the actions of lawmakers and regulators are shaping health care. Together, these reports represent one of the few ongoing, long-term assessments of the nation's health care system at the community level.

Comparative Effectiveness Database

The National Patient Advocate Foundation has launched a comparative-effectiveness research database (PDF) that compiles research funded by the National Institutes of Health and the Agency for Healthcare Research and Quality...The database was launched with information on 224 NIH research projects; a separate database catalogs information on 49 cancer-related comparative-effective research projects funded through the NIH...Also included in the database is information on 352 AHRQ research projects, 72 of which were paid for with stimulus funds. (Source: (1/6, Andis Robeznieks, Modern Physician)

Consumer Expenditure Survey – Bureau of Labor Statistics

The Consumer Expenditure Survey (CE) program consists of two surveys, the Quarterly Interview Survey and the Diary Survey, that provide information on the buying habits of American consumers, including data on their expenditures, income, and consumer unit (families and single consumers) characteristics. The survey data are collected for the Bureau of Labor Statistics by the U.S. Census Bureau.

Consumer Price Index

CPI database, inflation calculator, etc. The Consumer Price Indexes (CPI) program produces monthly data on changes in the prices paid by urban consumers for a representative basket of goods and services.

Consumer Reports Health: Best Buy Drugs

Consumer Reports publication "Best Buy Drugs (or Best Drugs For Less)" which rates 200 Rx and OTC drugs on efficacy and cost, using an "unbiased review of the best scientific evidence available". They work closely with experts at Drug Effectiveness Review Project, part of the Oregon Health and Science University in Portland.

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